Well Ian's PELD is a 4....yep a 4. The doctors calculated it three times just to be sure it was right and it is. It is truly amazing. This is the best he has ever been--even when he was first diagnosed and after his surgery. We are thrilled and yet also in a bit of shock that our wait will continue. He is truly a miracle. He continues to be on several medications which are obviously helping him. Because he is doing so well, we are not pursuing a living donor search at present. The doctors are pleased with his growth (50% for weight and height which is amazing for kids with BA). He is eating well...yogurt is the favorite by far although chocolate milk is climbing the ladder pretty quickly. I check food lables for protein content like nobody's business! It is cute because when I ask him what animals eat it is always yogurt no matter what the animal--cows, fish, birds--all eat yogurt.
It is hard to believe that Christmas is around the corner. I did the usual black Friday shopping. What a great site it is to see all these people rushing to get to the same item on sale. I'm pretty much done shopping now and will begin to wrap things slowly. Ian is very aware of Santa and I'm interested to see if he will sit on Santa's lap this year.
Ian is back on the nebulizer for breathing treatments again. He struggles this time of year. We don't have to do them around the clock this time which is good for everyone. Brett also has a cold--given to him by none other than Ian. I'm managing so far.
All things considered, we have so much to be grateful for and try to count our blessings each day. I'll write more on the next post.
3 months ago