This post will be pretty short as my computer is slow and livia is still up.
Clinic yesterday was ok. Slow to be called back. PICC line dressing change was better than the last time but still trauma.
The big news is that we may be looking to head home to Charleston early next week. We've got to have good labs tomorrow, Friday and again on Monday. If they are clear, no fevers, etc. and--and this is hte big AND, there has to be a lab in Charleston area that can turn lab results around fast enough (a day for prograf levels is key). I feel confident that MUSC will have that capability but they need to verify, etc. We'll be set up on home health as well. So lots to do it make it happen. I am nervous to go home b/c then we are 4.5 hours away from the transplant team should anything go wrong but at the same time I am anxious to get home. Brett is flying in this weekend--we think. Still to be set up.
Went to target today. I had Ian wear gloves and a breathing mask too to safegaurd him. It was good to get out. We went to TCBY for "ice cream" (ate in the car) and then to PDK airport.
More tomorrow....
Recent Thoughts by Bethany
7 years ago
3 comments:
Target and TCBY sounds like the perfect day-but going home sounds even better.
Love to you.
It sounds so exciting! Look how far you guys have come! I know you have a long road ahead, but WOW! you all are amazing! Prayers, thoughts, and love and being sent your way everyday!
I hope all works out and you can head home.
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