Day 18 Leaving tomorrow?

So today is Day 18. Our routine at this point is for Mom, Livia and I to come into the hospital in the morning after we eat breakfast and I feed Livia. I let Brett sleep some more, shower, eat while I spend time with Livia and Grandma spends time with Ian (typically in the playroom). The playroom has a "flinstones" little tykes car that Ian loves to drive around the floor. We eat lunch together in Ian's room (Ian typically has bread, string cheese and cheetos) then head back to the Mason house typically with laundry in tow. After preparing dinner at the Mason house, we come back to the hospital and eat with Ian and Brett. Ian typically has chicken nuggets, cheese pizza, or grilled cheese. He discovered cool ranch doritos the other day pilfering them from Brett. After dinner and playtime with Ian, we leave and go back to the Mason house and go to bed to start the routine the next day. One of the harder parts of the transplant is not being together as a family. Brett and I have recently talked for about a half hour at the end of each day in the waiting are while Grandma snuggles with Ian in his room after scriptures and prayer. It has been huge for Brett and I to talk about things--not even all related to Ian's transplant even.

So we are currently looking for a portable DVD player for our car given the driving we will need to do in the next year or so. Those reading this with recommendations on what works/didn't work--please pass that info along. We want to invest in one with two screens so that Livia can watch it too when she becomes interested in that sort of thing.

Ian asked me today if we were leaving the hospital tomorrow and if he was getting a new building for his train set...clever little boy! He took meds like a champ and his prograf level is down today so it does look probable that we could leave tomorrow.

We really appreciate those who sendus emails, notes, etc. It really helps so thank you so much.